GDPR vs CRISPR: the Bureaucracy Against the Science that Saves Human Life

Man Receives First In Vivo Gene-Editing Therapy. This is how The Scientist titles about the news of a man (whose personal data have been made public) affected by Hunter Syndrome that has been treated with a gene-editing technique.

It is much too early to know whether the genetic therapy will work (thus withdrawing the need to pay huge money just to control, and not eliminate, this rare disease). But fact is that scientists did a giant step ahead by treating humans with this method.

Thus it is reasonable to expect that in the very next years many genetic diseases will be finally cured and not just taken under control until the patient dies.

This will happens notwithstanding the GDPR – or, better – notwithstanding the blind madness of the bureaucratic and pedantic interpretation that, in the name of the “protection of fundamental rights” endangers the scientific research and deprive us of the basic right we all deserve to protect: the right to life.

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